The purpose of the Ethics and Legal Standards WG is to address issues pertaining to legal (e.g., IP, GDPR) and/or ethical (e.g., human subjects) standards for the AIRR Community.
Goals for 2022-2024
- Finalizing and publishing Database Directive manuscript and summary
- Planning, conducting and evaluating a survey regarding obstacles to data sharing
- Providing guidance on GDPR issues
- Developing an ethical framework for patient engagement and studies involving indigenous people
- Evaluating legal and ethical aspects of current Open Science practices and recommendations in collaboration with other stakeholders (e.g., RDA, IUIS)
- Supporting the Diagnostics WG and Meetings SC in organizing an event covering AIRR-seq, AI/machine learning and legal and regulatory aspects
Products
- Draft manuscript on Database Directive and its implications for biological data
Members
Co-leaders: Tania Bubela
Members: Tania Bubela (Co-lead), Christian Busse, Daniel Emerling, Artur Rocha, Jamie Scott and Jacob Sherkow
